We note that in the case of cancer or mental disorders, for example, when patients exit a relatively long care pathway and find a career, they are asked to keep their health tests silent on their resume. There is a huge stigma attached to people at risk. However, it is possible to incorporate these tests into the development of professional skills, turning these weaknesses into an asset.
How did the idea to create this chair come about?
The University of Patients (UDP) has graduated more than 300 patients and has supported the establishment of about thirty patient care partners, mainly in oncology, but also in corporate or public service departments. We now need to take the next step and recognize emerging healthcare professions, such as patient partners. Concretely, this consists, for example, of filing professional certification files. Today, when a hospital employs patient partners, there is no network to know how to pay and integrate them into the organizational chart.
How do you reach this new stage?
The chair is committed to designing skills assessment centers that are sensitive to vulnerabilities and open to people who wish to gain an experience assessment with their health challenges in mind, before exercising their full power at work on the world and their environment. So we will build tools that take into account learning and life experiences in situations of vulnerability. These tools will be more comprehensive, more flexible, more adaptive and scalable to life experiences and challenges than those currently in use. The goal is to propose a form of VVAE (Valuation and Validation of Experience).
The chair is also a learning space. Who is leading these interventions?
To conduct seminars and teachings, we invite experts and researchers. Our selections will focus on theoretical currents that consider patients, as legitimate poles of knowledge, favor capacity-based approaches to vulnerability, integrate gender in health, use pedagogical approaches that are not limited to slide shows, etc.
The Kushner Act Just Celebrated its 20th Anniversary: Has the Place of Patients in the Health System Progressed Adequately Since 2002?
The law has undisputedly changed the rights of patients! But the place of patients in the health system still poses problems when they want to turn their experience into expertise, pursue coursework, and wish to integrate the positions of a peer assistant or patient partner, positions that require pay. Progress must be made in this regard.
Interview by Lisette Grace
– Lisette Grace, “Kouchner’s Law, Twenty Years Later”, Espaceinfirmier.fr, 03/08/2022.
– Laure Martin, “Patient Partnership: Foundations of a Successful Collaboration”, Espaceinfirmier.fr, 14/1/2021.
– Laure Martin “Two new testimonies of patients”, Espaceinfirmier.fr, 11/15/2016.
– Françoise Vlaemÿnck, “User rights: passing score”, Espaceinfirmier.fr, 03/29/2012.
– Françoise Fleming, “Things are better … in the ‘Ten Years’,” nurse magazine, No. 298, April 2012.
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